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Data Quality Results Descriptive Profile (DQRDP)

A metadata application profile (MAP) developed by the PEDSnet Learning Health System to describe the results of study-specific data quality assessment checks, specifically those which examine real-world pediatric data. This MAP is optimized to describe the results of data quality modules in the SQUBA package, but is generally extensible to other data quality results types as well.

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About The Project

Current Version: 1.0

Last Updated: Spring 2026

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Developers & Affiliations

  • PI, Informatics Lead: Charles Bailey, MD, PhD1
  • Data Analytics Technical Director: Hanieh Razzaghi, PhD, MPH1,2
  • Metadata Librarian: Annabel Pinkney, MSLIS1
  • Data Integration Analyst: Kaleigh Wieand, MS1
  • Data Integration Analyst: Kimberley Dickinson, MS1
  • Clinical Research Program Manager: Miranda Higganbotham, MPH1

1 PEDSnet Learing Health System, Applied Clinical Research Center, Children's Hospital of Philadelphia, Philadelphia, PA
2 Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA

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Publications

⚠️ This section is in progress - Come back soon!


Uses and Features

⚠️ This section is in progress - Come back soon!

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License

Distributed under a Mozilla Public License Version 2.0. See LICENSE.txt for more information.

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Contact

For inquiries about PEDSnet and the PEDSnet Data Quality Program: pedsnetdcc@chop.edu
For inquiries about the metadata schema and reuse: pinkneya1@chop.edu

Project Links:

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About

Metadata application profile for data quality result artifacts. Developed as part of PEDSnet study, Semantic Data Quality Standards for Multi-Center Clinical Research Studies and Networks.

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